Seeking Information on Complex Partial Seizures Aka Absence Seizures

I know taurine defficiency has to do a lot with seizures in autistic children. Find info regarding this aminoacid. Aminoacids act like neurotransmitters in the brain and it is imperative that she gets all the brain food that she needs.
Omega 3, or krill oil will also help with brain activity. Children with starving brains have all type of dysfunction in the brain. Brain Nutrition is essential. Dr. Jaquelyn McCandless explains with detail how to nourish children's (or people's) brains in her book: Children with starving brains; a medical tratment guide for autism spectrum disorders.
Blessings

Dear Connie,
I developed petit mal seizures at age 11 in 1976 (10 second black out, no fainting), it would take me 30 minutes to be able to come back 100% but this vary,

The doctors performed CT Scans and treated me with only with meds... at the time dilantin and phenobarbital -I couln't handle tegretol.
I always noticed that a lot of stress, (examinations) a lot of excitement (a new present), were likely to cause seizures.
Also, I have always been irregular with my period, and always before my period I had at least one seizure. I averaged 5 seizures per month.

Later in 1987 the MRI scans showed that there was a tumor in the left temporal all along - and in 1995 (almost 20 years with seizures) I had a lobectomy (the tumor was growing dramatically, and I was having grand mal seizures).

I had no more seizures after the surgery, except in 2001 when I was expecting my daughter - I had a grand mal seizures, and never were put back on Phenobarbital 30 mgs.

Please let me know if you have any questions,

Maria F.

Hi Connie, I'm so sorry to hear about your daughter. My 7 year old son has been having complex partial seizures for the past 1 1/2 years. He was diagnosed at Stanford a year ago. They have good information on their website. There is also good information in a book called Epliepsy, a New Approach. It talks about triggers, diet, sleep, etc.

I definitely notice that if my son doesn't have a set schedule, with good sleep, good food, he's more likely to have an episode. He's on Keppra right now, a low dose, and it's helped with the actual manifestation of the seizures (they're pretty much gone), but he used to have nausea before a seizure and now he just has the nausea. Still trying to figure out how to help him with that.

I also notice that if he's emotionally upset, he's more likely to have a seizure.

The people who wrote the book about Epilepsy mentioned above also do biofeedback to help control seizures. They are in Santa Rosa. Maybe they can recommend someone where your daughter is.....?

Good luck with all of this, and feel free to email e with more questions. Also, check out the Epilepsy foundation website. They have a forum for parents with kids with epilepsy and you can post questions there.

Blessings to you and your daughter,

S.

http://www.brightmindsinstitute.com/

http://abcnews.go.com/Video/playerIndex?id=4883944

Love, G.. :0)
http://stemcellforautism.blogspot.com/

"I know of nobody who is purely Autistic or purely neurotypical. Even God had some Autistic moments, which is why the planets all spin." ~ Jerry Newport

Hi Connie,
I do not know anything about this condition , but this is the first time I have heard about this kind of seizure disorder.
I have not heard of Complex Partial Seizures or Clonic Seizures either but would love if you would share with me more about this?

My daughter who is now 16 1/2 has been having these seizures that apprear of petimal seizures, they effect her central nervious system, she looses control of limbs, sight hearing, and mobility for a period of .30-4 min and sometime 6+ times a day. The doctors continue to tell me they are NOT seizures they are episoids and that it is a somatiform disorder because they have NOT had any abnormalities in her brain tests.
yet they have not observed her enough to even get seizures on a monitor.

I disagree with their finidings as my brother had grandmal seizures, and the meds they give my daughter do nothing to help... because of this she lacks a quality of life due to being limited in what she can do.... and she has physical signs prior to her episodes!!!!

I wish you all the luck and your daughter regarding this.... for my daughter it has been a battle now for 3+

I will be praying for your family!

Peace,
J.

Hi Connie, I am mom of special need child, we have net work of moms sharing what they have done in similar situations. Please call me and I will connect you with people who've suffered with seizures. They will tell you what they've done.
My name is A..

I currently suffer from this. i am 38 and have had this since I was 3. There are medications that can help but not prevent occurances. For me the symptoms are 1)I all of a sudden feel very "fussy" like my body is detached from my brain 2) my head feels heavy but I can't move it very fast to lie it down on my chest 3) intense pressure in my head like someone is squeezing, but it is not painful just lots of pressure 4) I can hear you but not feel you touch me, not see you even if my eyes are open, and not talk eve nif my mouth is moving. 5) sometimes they make me tired with a headache afterwards and I sleep for hours; i have even stayed asleep as long as 14 hours at times

My tiggers are when things are extreme : heat, cold, I'm tired, hungry, and really stressed about something.

I take Keppra every morning ang night. I have taken Depakot(sp?), Phinabarbatol (sp?), Tegrotol (sp?), & Triliptol(sp?).
I have found that Keppra is the only one that works for me now, but i told Phinbarbatol when I was a kid until they had to give me so much that it turned me into a sombie at the age of 15 years.

I don't know much about seizures but me and a ton of people I know have had various medical problems and have had very serious diagnosis. I was told I have (or could have) a tumor, depresssion, fibromyaga nuereolgical issues/damage etc. For me and most of the people I know, it was the chemicals in process foods. You really wouldn't believe what they put in everyday foods. My system couldn't deal with all of the toxins and it finanly broke down. Anyhow, I have cured myself through natural cures, mostly foods. Most people don't even think that such a simple thing could be so impactful but IT IS.

I think the is a relation with food on almost every issue and there is almost always a more natural cure. See the movie "First Do No Harm" a true story about a child with seisures. It may give some grewat insight on how to help your daaiughter without doing her more harm (i.e. the side effects she will have with all of the treatment/ eds they put her on).

I am not a medical professional, I am not some health-nut. I am just an average person who decided to take control of my own health. Please, please, please just look up the food relation to conditions and try it concurrently with the other treatments. It might just be the answer and it can't hurt to try it.
Good luck.

Hi Connie,

My son was diagnosed this summer at the UC Davis MIND Institute with Complex Partial seizures. He is now 4 years old and this scared us to death this summer. He started having brief (5-10 seconds) episodes every 30-90 minutes. He clutched his belly, grunted, had an odd laughter and it was hard to tell if he had a pleasure/pain type of sensation. He was confused, slow to speak and often tired afterwards. As a 3 year old at the time, it was hard for him to verbalize his sensation and it seemed as though anything & everything could be a trigger.

We are trying to get into an Eastern Medicine type doctor here in Sacramento to provide alternative advice b/c all the other doctors are comfortable saying, "in 75% of the cases, you don't know why this happens". His seizures are now controlled on Depakote, but I still want to try to identify food triggers or other possible natural methods to help our son. I'm sorry for what you are going through right now with your daughter, but I wish her the best of luck in her treatment.